Extra Care

What is neonatal care?

Babies that require extra care are also described as receiving neonatal care. Neonatal care is the type of care a baby born premature or sick receives in a neonatal unit.

Units are a part of hospitals which provide care for babies who are born prematurely (before 37 weeks), with a medical condition which needs treatment, or at a low birthweight.

We know that having a baby in neonatal care is likely to bring up a whole range of emotions, and some of these can be hard to face.

It may be that you feel anxious about why your baby has been born prematurely or sick, or about the treatment they are receiving. The team of health professionals can give you more information about your baby’s condition and the needs they have.

Why is my baby in neonatal care?

Babies are admitted into neonatal care for many different reasons. The main reasons for a baby to be admitted are:

  • they are born prematurely
  • they have a low birth weight
  • they have a specific medical condition which needs treatment in hospital

Neonatal care in Lincolnshire

There are neonatal units at Lincoln and currently at Boston.  These two units are part of a regional network of neonatal units that work together across the east midlands to help ensure babies get the right treatment in the right place.

For Parents

Your neonatal journey – on admission

Seeing your baby in neonatal care is scary. It is not the journey to parenthood you were expecting and quite often, you are also recovering from a traumatic birth. The staff on the ward know this and are there to support you and work with you to look after your baby. Talk to the nurses and doctors as much as possible about the condition of your little one and ask lots of questions, even if they may seem obvious.

Over time the nurses will help you to feed, change and run observations on your little one.  Importantly they will encourage, where possible, kangaroo care.  This will help you bond with your baby and has been shown to have many benefits to your baby too.

What will I see on the ward?

Parents are able to come onto the ward whenever they want and nurses are keen to work in partnership with them for the care of their babies. The ward is usually locked for security reasons and you will be granted access by the nurses or a receptionist.  

The wards must be as clean as possible to avoid the little ones catching any illnesses. There are usually many sinks for you to wash your hands and each cot or incubator usually has alcohol gel nearby so please use these and help us to keep the germs away.

 

Where your baby will sleep

Depending on the level of care needed your baby will be in an incubator or cot. The incubator regulates the baby’s temperature- something she may not be able to do by herself initially. Often the incubator is covered up with a blanket. This is to help prevent your baby from becoming overstimulated by the lights and noises around them. In fact, many wards have a quiet time where they turn the lights low and ask that visitors stay away (parents always welcome). 

As your baby becomes better at regulating their temperature they will be moved into a cot with a heated pad and then a cot by itself. 

Feeding

Your baby may be tube fed at first. This is where a feeding tube runs from their nose into their stomach and there will be regular and frequent small feeds for your baby that you may be able to give. If you are able, you will be supported to express breast milk that can be fed to your baby. The wards have a discrete expressing room and storage facilities for your milk.

What do I need to get for my baby?

Initially the ward will have all the items required for your baby  including nappies, wipes, blankets etc. As you are able, you will be encouraged to buy your own nappies and wipes and the nurses will advise on the best type for your baby’s delicate skin. You may also wish for your baby to wear its own clothes. It may be suggested you wash these in advance, even if brand new, to protect your baby.

 

Getting ready to go home

On the last few days or weeks of your baby’s stay you may be able to room in on the ward. They have a couple of rooms for parents and these are often used to help the parent get used to taking greater care of their baby, particularly overnight and particularly with bottle and breastfeeding.

Going home

Going home can be both exciting and daunting at the same time. 

You will want to make sure that in the first few weeks, anyone with bugs stays away and all visitors continue to wash their hands, as they would if visiting the ward. 

This time can be both precious but also isolating as you try to keep your little one safe and also the trauma you’ve been through can start to sink in.  

In the first couple of days your health visitor will be in touch to arrange a visit. S/he will talk through all activities in the area – stuff that you might have missed out on if you didn’t make it to antenatal classes. 

There are also informal support networks out there. If you stayed at Lincoln you will be invited to join the Kangaroo Club Facebook group. This is for staff and all parents who have had children on the ward. It’s where people share stories and keeps in touch with other parents. It’s where you’ll also be invited to regular family get-togethers and events such as the Christmas party.

If your little one stayed at Boston , there is the SNAPP Facebook group where there are also details of regular get together and events.

Better Births also has a number of Neonatal Voices – parents who are working with them to help develop support for parents of Neonates.  If you would like to know more or be put in touch with one, let us know. 

An App for you

Integrated Family Delivered Neonatal Care App

The IFDC app helps parents of premature babies take an active role in their newborn’s treatment in an intensive care unit.

Using the app’s educational information, parents can better understand what’s happening to their baby, chart things like growth and feeding progress, and keep a diary of the key stages throughout the experience.

Who is it suitable for?

The parents and families of babies born prematurely.

How does it work?

The IFDC app has been designed as part of Imperial College Healthcare Trust’s Integrated Family Delivered Care project. It aims to put parents at the forefront of their premature baby’s care, with the support of healthcare professionals.

This approach has been found to reduce the anxiety of parents, as well as benefit their newborns’ development by improving weight gain and breastfeeding rates, and reducing infections and the length of hospital stays.

The app gives parents the opportunity to learn more about neonatal care by accessing medically accurate information from a trusted source.

The timeline function can be used to easily track the weight and length of your baby, record skin-to-skin cuddles, and monitor feeding and expressing rates. Events, pictures and memories can be stored in the app’s secure diary.

How do I access it?

The app is free to download from the App Store and Google Play.